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and assistance. Contact Us Bicuspid Aortic Foundation 30100 Town Center Drive, Suite O-299 Laguna Niguel, CA 92677 Telephone Toll free in the US (888) 310-HOPE (4673) or (949) 495-0027 Fax: (949) 606-0413 Email: contactus@bicuspidfoundation.com Copyright © 2004 - 2010, Bicuspid Aortic Foundation. All Rights Reserved. The Bicuspid Aortic Foundation recognizes the importance of maintaining the privacy of individuals who use its web site. In using the Bicuspid Aortic Foundation web site, you are agreeing to the terms of this privacy policy. If you do not wish to accept the terms of this privacy policy, please do not access the Bicuspid Aortic Foundation web site. All personal information provided to the Bicuspid Aortic Foundation will be kept confidential within the Foundation, and will not be disclosed to any third party without the permission of the individual. Email and messages sent through the web site are not secure. Therefore, personal information you transmit to the Bicuspid Aortic Foundation may be intercepted by others and is done at your own risk. The Bicuspid Aortic Foundation may contact you regarding topics of interest. If you do not wish to receive such communications, you may contact the Bicuspid Aortic Foundation and indicate that you do not wish to receive them. If at a later time you again wish to receive such information, you may indicate that by contacting the Bicuspid Aortic Foundation. The Bicuspid Aortic Foundation makes no representation whatsoever regarding the privacy policy of other web sites whose links are on the Bicuspid Foundation web site. Your usage of other web sites is entirely at your own risk. You should carefully read the privacy policies of all web sites that you visit. Please contact the Bicuspid Aortic Foundation regarding any questions you may have about this policy. The information on the Bicuspid Aortic Foundation website is provided for general informational purposes only. This information is not professional, legal, or medical advice. Any medications, products, or treatment mentioned are presented as information only and do not constitute any recommendation, approval, or endorsement. Any information is general in nature and is not a substitute for medical care. You should contact a physician or other qualified medical professional for advice about all health-related conditions. The Bicuspid Aortic Foundation, including its officers, directors, volunteers and any others acting on its behalf, individually and collectively, make no representations or warranties, expressed or implied, regarding the contents of this website, including its accuracy, completeness, or reliability. Any links or references to other websites provided on the Bicuspid Aortic Foundation website are made available as a convenience only. The Bicuspid Aortic Foundation has not reviewed all of the websites linked to this website and is not responsible for the content of these sites or your use of them. |
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Bicuspid Aortic Valve Disease |
All aortic aneurysm and dissection in the chest |
For families and medical professionals, by families and medical professionals |
Creating a climate of hope, an atmosphere of caring, and a source of information for
all who are touched by thoracic aortic disease and the medical professionals
who care for them. |
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Creating a climate of hope |
BICUSPID AORTIC FOUNDATION |
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BAVD and TAD in Our World Bicuspid aortic valve disease and other forms of thoracic aortic disease touch many
people of all ages, in all walks of life. Following are press reports and videos
giving glimpses into their experience. |
Regarding the video content above: • Fred Hoiberg's bicuspid aortic valve was diagnosed when he was in college. However, as many have experienced, nothing was ever mentioned about the risk of developing an aortic aneurysm. In Fred's case, a life insurance physical detected the large aneurysm in his chest. • Fred Hoiberg and Doug Wray are examples of two individuals born with bicuspid aortic valves who developed aortic aneurysms in their chests. Although BAV is estimated to occur in up to 2% of the population, it's association with aortic aneurysm and dissection is still often overlooked This lack of recognition continues to put lives at risk. • The increased risk of brain aneurysm is not mentioned. The Bicuspid Aortic Foundation is aware of several families, including that of Board Secretary, Carrie Mettler, where both thoracic aortic aneurysm/dissection and brain aneurysms are present. In the press recently, the experience of Amy and Megan Moxie is a tragic example of tremendous loss and suffering associated with diseased blood vessels involving the aorta and the brain. All of the risks associated with aortic disease in the chest must emerge from the shadows and be counted. The risk of brain aneurysm in families with thoracic aortic disease, largely not acknowledged presently, must also be included in the picture. With the publication of a paper regarding BAV and the incidence of brain aneurysms in Neurology, May 4, 2010, Anything less leaves someone vulnerable to severe injury or death. Screening is very possible. With existing imaging technology, the heart, the aorta, and the brain can all be seen. |
Fifth Annual Conference, October 1 - 2, 2010 |