Bicuspid Aortic Foundation View From Here July 2007

Meeting Together in Southern California

This month finds my own excitement building in anticipation of two very special days in September. These days are set aside for a very important reason: to meet the needs of families and friends touched by BAVD and TAAD. Last year's event along with thoughtful suggestions from many through out the year have helped us plan for several informational sessions as well as time to meet others and share common experiences.

There will be coverage of some very important topics: state-of-the-art imaging options available today, Acute Aortic Syndrome, Familial TAAD, BAVD, and the risk of brain aneurysms. Practical suggestions for requesting and organizing medical records and generally living with aortic disease will also be shared. In presenting these topics, the Foundation is fortunate to have the expertise of our Scientific Advisory Board members coupled with the insight and experience of individuals and families. Together they are the essence of the Foundation's mission, bringing information, expertise, and hope to us all.

This picture, taken at last year's Conference, is a wonderful expression of the tremendous power of physicians and patients working together to increase awareness and save lives. Carrie Mettler (left) is pictured with Dr. Wouter Schievink, who in January 2004 performed surgery on an aneurysm in Carrie's brain. Carrie continues to live with a carefully monitored bicuspid aortic valve and ascending aortic aneurysm. Dr. Schievink's pioneering work regarding brain aneurysms and BAVD saved Carrie's life, and Carrie's willingness to share her experience has brought both awareness and hope to others with BAVD who may develop brain aneurysms.

For those planning to attend, you may contact the Foundation by email or phone as listed in the Contact section below. Please include the names of those planning to attend and an email address and contact phone number where you may be reached.

There is no charge to attend the Conference sessions. Costs to attendees would include expenses for travel, lodging, and meals. The conference sessions will be held at the California Yacht Club, Marina del Rey, California. Following are links to the location as well as lodging possibilities in the area. Space is limited, so please contact us soon to make your reservation.

Location - California Yacht Club, Marina del Rey, California

Lodging near California Yacht Club

No doubt the sun will shine in southern California this September as it typically does. But beyond that, there will be a special glow as we meet together. It is that special glow that surrounds us when we find knowledge, understanding, compassion, and hope.

I look forward to meeting in September,
when together we will create a climate of hope.

Sincerely,
Arlys Velebir
Chair, Board of Directors
Bicuspid Aortic Foundation

Contact Us
Bicuspid Aortic Foundation
30100 Town Center Drive, Suite O-299
Laguna Niguel, CA 92677

Telephone
Toll free in the US (888) 310-HOPE (4673)
or (949) 495-0027

Fax: (949) 606-0413

Email: contactus@bicuspidfoundation.com

The Bicuspid Aortic Foundation recognizes the importance of maintaining the privacy of individuals who use its web site.

In using the Bicuspid Aortic Foundation web site, you are agreeing to the terms of this privacy policy. If you do not wish to accept the terms of this privacy policy, please do not access the Bicuspid Aortic Foundation web site.

All personal information provided to the Bicuspid Aortic Foundation will be kept confidential within the Foundation, and will not be disclosed to any third party without the permission of the individual.

Email and messages sent through the web site are not secure. Therefore, personal information you transmit to the Bicuspid Aortic Foundation may be intercepted by others and is done at your own risk.

The Bicuspid Aortic Foundation may contact you regarding topics of interest. If you do not wish to receive such communications, you may contact the Bicuspid Aortic Foundation and indicate that you do not wish to receive them. If at a later time you again wish to receive such information, you may indicate that by contacting the Bicuspid Aortic Foundation.

The Bicuspid Aortic Foundation makes no representation whatsoever regarding the privacy policy of other web sites whose links are on the Bicuspid Foundation web site. Your usage of other web sites is entirely at your own risk. You should carefully read the privacy policies of all web sites that you visit.

Please contact the Bicuspid Aortic Foundation regarding any questions you may have about this policy.

Disclaimer

The information on the Bicuspid Aortic Foundation website is provided for general informational purposes only. This information is not professional, legal, or medical advice. Any medications, products, or treatment mentioned are presented as information only and do not constitute any recommendation, approval, or endorsement. Any information is general in nature and is not a substitute for medical care. You should contact a physician or other qualified medical professional for advice about all health-related conditions.

The Bicuspid Aortic Foundation, including its officers, directors, volunteers and any others acting on its behalf, individually and collectively, make no representations or warranties, expressed or implied, regarding the contents of this website, including its accuracy, completeness, or reliability.

Any links or references to other websites provided on the Bicuspid Aortic Foundation website are made available as a convenience only. The Bicuspid Aortic Foundation has not reviewed all of the websites linked to this website and is not responsible for the content of these sites or your use of them.